While we don't want her to be sick, I have to say that having an answer is much better than not having a clue. Sydney does indeed have RSV but we are so grateful that we caught it before we took her home. The only treatment available to her at this point is being on the vent. It allows her to take a break from working to breathe and all she really needs is time. She looks so much happier today and she was alert and active all morning. As the day progressed she did more and more breathing on her own and used the vent less. The doctor told me that most babies get over it within 5-7 days and today is day 4 of her being on the vent. I'm so grateful for those monitors and their ability to track apnea and bradycardia episodes.
The trachial culture they took yesterday also came back positive for some kind of bacterial infection. The good news is that her blood work and other tests are not positive for an infection so they are thinking that it's something that was beginning to grow on her vent tube. Even better news is that the antiobiotics that she's already on will prevent her from getting the infection and we don't have to start any new drugs on her today. We know that the risk of infections are soo much greater for patients on the vent so it is a blessing that they caught this or they would have stopped the antiobiotics since they don't work to treat RSV.
Her weight is unchanged but the doctors are happy with that since she hasn't received any nutrition but IV fluid and calories in 4 days. We are also so happy that they decided to give her a few days on just being on the vent without doing the invasive tests (MRI, spinal tap etc) that they were contemplating doing. They would have just served to make her more uncomfortable. She was also due for another eye exam today but we're going to wait and do it at the end of this week or early next week.
RSV is a pretty severe illness but in the grand scheme of things, there are so many other horrible things that could have apnea episodes as symptoms that we're choosing to look on the (somewhat) bright side.
Thanks for this Sher: So do not throw away your confidence; it will be richly rewarded. 36You need to persevere so that when you have done the will of God, you will receive what he has promised. - Hebrews 10:35-36
4 comments:
How fantastic that they were able to diagnose what is wrong! Yay! Now on to getting well, baby girl!!!
I am so glad you have an answer. Now she can work hard to get over the RSV so she can go home with mommy and daddy!
Answers lead to solutions. If it had to happen, while she was in the hospital was the best time for it.
I'm so glad that you have a diagnosis. And I think that you're pretty lucky that she didn't get this after she came home. This way she got the help that she needed in the quickest way possible.
Have they given her any Synagis yet? It would help her body to fight off the RSV.
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