Wednesday, April 29, 2009

Monday, April 20, 2009

Baby's Day Out

I just had a birthday, so went out to lunch to celebrate.  Sydney had been with us to restaurants before but we kept her in the stroller the other times. This time we were brave enough to let her sit on a booster on the seat. She did pretty well and even did some colouring

She eventually threw that crayon into our pitcher of Sangria but we drank it just the same. They don't make those bad boys non toxic for nuthin!
They were having a car show right outside of the restaurant so my husband, who fancies himself a car enthusiast wanted to see it all. Never mind that I would ask him the make of a car and his standard response was, "Uhh..Ferrari??"

Sydney chillaxed while we took it all in

If you pretend her hair isn't lopsided, I will too. 

B would like me to let you all know that he would like this:

It's cheap too
He didn't want to be greedy and ask for this:

This shot is for my girlfriends. I'd never seen one before and suddenly I come across a dozen in one place.

This is a Bugatti. While I was taking this picture I overheard an elderly gentleman say that he could add the cost of every car he's owned in his life and he could only buy the door of this car. Naturally I looked it up. They're only 3,000,000 USD and only 150 are made every year. Crazy.
The End. 

Thursday, April 16, 2009

A letter from a father to his daughter

My friend Janis, shared this link with me today. I am just blown away by the things this man wrote and can relate to so, so much of it. I read most of it thinking, "Does he live inside my head?" Then there were the tears. A crier, I am not but this was the most touching thing I have read in a long time and obviously it had special meaning for me.

It is a very, very long read but is so similar to our NICU experience and the things we currently believe that you MUST read it. I insist.

I LOVE these two paragraphs in particular:

There are people, even those who love you, who would encourage you to accept those limitations, because they also fear. They fear you being hurt, or experiencing disappointment. They mean well, and they would protect you if they could.

Don't listen to them. Don't let their fears become yours.

And if it seems that I push you sometimes, that I make unreasonable demands, keep in mind the promise I made. Your destiny is your own. I can't chart that path for you. But my job is to make sure you don't stop somewhere short of that destiny because you settled for less than you can be. I tell you. 

Thank you Janis. 

Wednesday, April 15, 2009

Tuesday, April 14, 2009

Dear Child,

Doing this:

Every.time you run into a wall while doing this:

does NOT inspire me to help you.


Monday, April 13, 2009

Bleeding Love

This was one of our favourite songs last year...I would turn up the music and sing it loudly and Sydney would laugh and "dance" along.

I came across this video interpretation and wow...

Thank You Jesus.

Hope everyone had a great Easter.

Sunday, April 12, 2009

April 12, 2009

or The Day Sydney's hair was last combed neatly for a month. 

Grandy is gone for a month so expect pics with wild and crazy hair in the coming weeks.

I'm good at a lot of things. Hair combing?

Not so much. 

Now we know where she gets this look from

Wednesday, April 8, 2009

Wednesday, April 1, 2009

Warning! Warning!

Reeeeeeeeeally long post ahead. 

Back when Syd was first discharged from the hospital, her pediatrician noticed that she had a hoarse cry and suggested that it could have been caused by all the tubes she once had down her throat. She thought she would end up with a hoarse voice but didn't think it was very serious. It never bothered us and since she never cried much, we didn't think too much about it. 

We started RSV shots in October and her cries got louder and more noticeable every month. The pulmonologist noticed and voiced her concern everytime she would see us. At our visit last week she recommended that we speak to the senior doctor on staff and see what he had to say. I spoke to him and he felt that a bronchoscopy was in order to check her airway, vocal chords, trachea etc.

The procedure was done today and since it involved general anaesthesia, we all (Mommy, Daddy and Grandy) went to the hospital at dark o'clock this morning. The doctor who was administering the anaesthesia told us that she also had a 26 weeker, 22 years ago and he's doing great today. She said she remembers praying that he would live after he was born and now some days she wants to strangle him herself. Lol. I bet she's not the first parent to feel that way. 

With all the activity around her, Syd was growing increasingly restless and her separation anxiety kicked into high gear. 

"I don't know who you think you are lady, but I'm just gonna hang tight to my Daddy and keep my eyes on you. "

See my fist? Don't try any funny stuff!

Don't let this face fool you. I'm still watching your every move. 
Though we weren't there for major surgery, the procedure was done in the OR, just in case of any emergency. We were all still very anxious and it didn't help when they decided to do it earlier because another surgery was cancelled and they had time. If I were still a nail biter, I wouldn't have any nails left! They gave her a sedative while we were waiting so she would be relaxed and not lose it completely when they took her away from us. It was odd watching her just settle down and eventually go to the nurse willingly. I asked the doc for some of that medicine to take home.

I kid. I kid.

45 minutes later the doctor came to see us and declared that everything went really well and he didn't have any, "Oh My God's" during the procedure. She does have some minimal scar tissue around her chords  and a slight curve in her epiglottis but nothing that should cause her any problems. In fact, he things she will outgrow the cry as her epiglottis matures. The main thing he was looking for was a hole in her trachea which could happen from being on the vent but he said her trach was, "just beautiful!" Whew! 

We went back to see her and she as a bit groggy but in good spirits. They required that she have something to drink and keep it down before they would release her. They had told me to pack her some juice but since she doesn't get juice, we took milk as well. As soon as she saw her bottle, It was like she suddenly remembered that she hadn't eaten in over 13 hours. She calmed down enough to take tasted the Pedialyte but the second she tasted it she started screaming again. You would think it was acid or something! We begged them to allow her to have the milk but it was still a no go. Then it occured to me that she's used to warmed milk and maybe that was the root of her refusal to have it. The nurse warmed it and she gulped those 2oz down like her life depended on it. Apparently she would rather starve than have her milk cold. When the bottle was empty she was so not amused. Starve her and then only give her 2 oz??? Helloo!

She's not spoiled at all. *blank stare*

She was supposed to be groggy and listless for the next 24 hours but she's been tearing through the house like a Hurricane since we got home. Apart from a really long nap, she's back to her old self. 

More random pictures:
Getting ready to leave the house this morning. 
"Good Morning Mommy. Can you wait 5 minutes before you stick a camera in my face?"
These are the words above her bed/head. I love that verse. There are days that I walk into her room and it still uplifts me. 


If you read all of that, you deserve a gold star. :love: